https://www.taxtmi.com/news?id=57356 Systemic failures in implementing the National Rare Disease Policy leave financial assistance inaccessible, emergency support unavailable in private hospitals, public insurance benefits confined by eligibility, and no insurance market coverage for rare diseases; caregiver support and domestic research are lacking. Administrative procurement delays in defence and CGHS cause multi month treatment gaps, and judicial delays threaten the right to life by preventing timely access to therapies. Stakeholders demand coordinated action, policy execution, expanded coverage, research investment, and administrative reform to restore timely, affordable access to treatments. en-us Tue, 30 Sep 2025 10:46:02 +0530 Tue, 30 Sep 2025 10:46:02 +0530 TaxTMI RSS Generator https://www.taxtmi.com/news?id=57356 Systemic failures in implementing the National Rare Disease Policy leave financial assistance inaccessible, emergency support unavailable in private hospitals, public insurance benefits confined by eligibility, and no insurance market coverage for rare diseases; caregiver support and domestic research are lacking. Administrative procurement delays in defence and CGHS cause multi month treatment gaps, and judicial delays threaten the right to life by preventing timely access to therapies. Stakeholders demand coordinated action, policy execution, expanded coverage, research investment, and administrative reform to restore timely, affordable access to treatments. News - Tue, 30 Sep 2025 10:46:02 +0530 https://www.taxtmi.com/news?id=57356