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    <title>Around 1,000 patients with rare diseases registered with Centres of Excellence, LS told</title>
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    <description>The National Policy for Rare Diseases (NPRD), 2021, identifies 63 rare disorders and designates 13 government tertiary hospitals as Centres of Excellence for diagnosis, prevention and treatment, with dedicated funding to strengthen infrastructure. Through these Centres, a defined financial assistance ceiling per patient is provided for treatment, with budgetary allocations made for implementation. Medicines imported by Centres or individuals for personal use are exempted from basic customs duty and Integrated Goods and Services Tax to improve access to therapies.</description>
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